Recovery Peer Support Groups

We’re gauging interest in virtual group meet-ups for individuals who suffer from ME/CFS, Long Covid, POTs and Fibromyalgia with a recovery-focused mindset.

What is the concept?

• Community/peer support groups

• Potentially, starting off with combined ME/CFS, Fibro, long-covid and POTs group as they often are comorbid or relate. Other illnesses can be considered if there is a demand and alternate groups can be set up. Feedback on this needed and wanted.

• The format will be shaped based on feedback from interested participants

• The groups will include people who have experienced recovery, providing a space to share insights and support

• Aiming to offer a space for individuals to process traumas and grief as part of their recovery journey

• These groups will likely focus on:

  • Sharing experiences

  • Offering support

  • Signposting resources

  • Creating a space for people to share their stories and vent

• The structure and facilitation will evolve based on group needs, and may not involve professional facilitators in the early stages

Why is this different?

• We understand that some existing support groups, such as those run by ME Awareness, may unintentionally reinforce the idea that recovery isn’t possible.

• Our aim is to create groups that are fully recovery-minded, focusing on hope, progress, and growth.

Additional details:

• International group: Time zones will be considered to accommodate participants from all over the world.

• Monthly meetings: The groups are expected to meet monthly, but the exact timing and frequency will be shaped by feedback.

Next steps:

• At this stage, we are simply gathering interest and feedback to understand what participants would like from these groups.

• If you're interested, please complete the form below to help us shape the future of these sessions.